haemophilia Current Affairs - 2020

February 29: World Rare Disease Day

Every Year, last date of February is observed as World Rare Disease Day. It was first launched by Eurordis in 2008. It aims to create awareness about the impacts of the disease. This year, it is observed on the theme Theme: Reframe Rare for Rare Disease Day Rare Diseases The rare diseases include Thalassemia, Haemophilia, Read More…

National Draft Policy on Rare Diseases

On January 13, 2020, the Government of India released its National Draft Policy on rare diseases. The policy has proposed one-time fund of Rs 15 lakhs to treat rare diseases under Ayushman Bharat. The policy was drafted by Ministry of Health and Family Welfare Highlights Under the policy, certain medical institutes will be certified as Read More…

ICMR: Task Force on Gene Therapy

The Indian Council of Medical Research (ICMR) will set up a task force on gene therapy in order to encourage research in the field. The purpose of setting up the task force is to explore gene editing based therapeutic approaches that will treat illness. Highlights The task force will work on genetic diseases affecting brain, Read More…